No news

Nothing new to report really. We are just waiting to get into the new doctor at Glennon, and that won't be until Oct. 9th. Seems like forever away! Bryson has been doing great. He cut his first tooth and has been fussy from that, but otherwise doing great. Therapy is going really well. He is now rolling over and sitting up on his own. Its awesome.

I spoke with the old immunologist that we went to a few weeks ago and didn't like what they had to say. Their solution was to give Bryson boosters of his vaccinations that his titers came back low on. That made no sense to me. I understand that means that he didn't take to the vaccinations the first time he got them, so why do it again? Why not try to figure out WHY he didn't take the vaccinations? They didn't have any answers for me, and didn't even address the critical low labs that came back. I was pretty pissed. I just keep thinking thank GOD for our pediatrician and thank GOD I work in a hospital so I know better with some stuff. What if I didn't know better? Would this all just get ignored? Scary. I spoke to our ped about all of this and she was shocked. She doesn't want to vaccinate him until we see the immunologist at Glennon, which I agree with. She also wants to know WHY this happened the first time, so I know I am not crazy in thinking that this doctor was wrong. Not only am I unhappy with their answer to everything, (which to me is just covering it up...not fixing it) but their staff was so rude. Never in my life have I been so uncomfortable in a doctor's office (and believe me, we have been in our fair share!) Also, they NEVER called me with his results. I called them four times in two days, knowing that they had his results because I sat there and watched the lab tech fax them over to them, and they would not call me back. It took one week for me to talk to someone in their office about his lab work and the never even mentioned the low labs that our pediatrician was concerned about. The system is so messed up. Anyway, enough of me venting about that. Long story short is, there is nothing new going on with him until we go and see this other doctor at Cardinal Glennon.

Connor is home on cycle break for the next three weeks...ahhhhhh!!!! I think I am going to go crazy! Don't get me wrong, I love being with my kids, but he likes to be entertained ALL day. I will survive, lots of trips to the zoo in our future!

Here we go again!

Poor Bryson! That's all I can say.

We went to an immunologist here in St. Louis and they ordered a BOAT LOAD of labs on the baby. Nine giant tubes of blood! Poor little man! I made the mistake of taking him to St. John's for this and that is the last time I will do that. I love where I work, but for stuff like this Brian and I decided he needs to go to a "Children's Hospital". They stuck him so many times it was crazy! Finally I called one of the NP's that I work with to come down and try to do it and they did two art sticks and finally got it in his scalp. It was awful. I felt so bad, not to mention that I pushed for this work-up to be done because I wanted to make sure everything was ok. Talk about guilt. It turns out my gut instinct was right on.

Bryson's CBC looked awesome, except the fact that his ANC count is going back down. It is still within normal range but has dropped from 4500 to 2000. Why?

One of the panels they drew was an immunoglobulin panel, so it checked his IgG, IgA and IgM levels. The immunologist told me she would guess that his IgG would come back low, but the other two should be fine, especially since he hasn't been sick! Guess what...all three were low. Now I couldn't begin to explain what all that means, I just know its not very good. I know it means he has a poor immune system. Our wonderful pediatrician called me this afternoon and she said she wants us to go and see an immunologist at Cardinal Glennon. Not that I don't like the one we were going to, but she is fresh out of residency and I do NOT like her staff at all. They were so rude to me. I figured I could handle it for a few visits, but it turns out this is going to be a process so I don't want to deal with them and I shouldn't have to. Plus, we want the best for Bryson. The thing that stinks is that this is all out of our network for insurance, but we will find a way to manage like we have done in the past. I called the doctor down at Cardinal Glennon and they can't get us in until the middle of October, I know our ped wants us in asap, she tole me to call her if it was going to be a while to get in and she would call for me. Hopefully we get in sooner. I just want this all addressed.

Some of the other tests they ran aren't in yet, I don't even know what half of them mean. I know they will take over a week to get back. So I guess we will wait and see!

I am sure it will all come out to be ok. I am just really hoping that he doesn't need to have the IVIG like he did in the past, that was where all our problems started last time.

I will post once we know more!