Why I blog?

As many of you know, I started this blog for everyone to keep up with what was going on with Bryson. Through doing this, I have found that it is a great way for me to release some of my anxiety and stress over all the stuff that's going on. I know it seems crazy to put all that has happened to us out there for anyone to read, but I have found that I have made a few new friends by doing this. I have connected with a few other mom's who are going through not the exact same thing, but similar things. This has helped me so very much. I don't feel so alone in all of this.

It has also been a way for me to keep track of everything that has happened. This little man has been through more stuff than I could ever fit in his baby book! It really has been a good reference for me to come back and look at.

Things are still pretty quiet for Mr. Bryson now, thankfully. We are blessed.

Bryson is walking!! I will try to post video later. Its so cute. I have noticed that his left leg is a bit stiffer than his right. He swings it out and around instead of straight out. He has a hard time with it. I was kind of bummed to see this because I thought we were done with the whole "left sided weakness" thing. Weakness or not, he is walking and that is the important thing! He cracks me up, when we stand him up so he can walk he just gets the biggest kick out of himself. He thinks he is the best darn thing since sliced bread! We go to therapy tomorrow, so I will see what Miriam has to say about it all. Hopefully, the more he uses it the better it will get just like the other stuff he had to overcome.

I know I always end my posts with this...but I mean it. Thanks so much for all the prayers!! He has been listening.

Bryson's birthday pics...better late than never!

Its been a long time since I've posted any pics. These are from Bryson's first birthday, back in January. OOPS. He had an elmo cake, that turned out amazing. We just had a few family members over for pizza and cake to celebrate. Bryson loved every minute of it!!!

My litle messy man enjoying his first birthday cake. You get smarter after the first child. Note that he is down to the diaper. The reason should be pretty clear.....

Back to normal

Things are back to the norm around here. Bryson has been doing great since he was sick a few weeks ago. No more temps or cough. YEAH!! We will be doing labs again soon, but I am pretty optimistic that they will be better. I know his CBC last time was great so that is promising. I am really curious to see what is IgA IgG and IgM levels are as well as his T-cell function and B-cell function. Time will tell!

Connor is doing great. He is on spring break right now and loving every minute of it. I am really enjoying this break with him. He is such a great big brother to Bryson, its so sweet to watch them together. It has been awesome outside so we have been doing a lot of playing outside. Bryson still isn't walking, but he is really getting close. We go back to therapy in a few weeks so we will see how that all goes!

Otherwise, nothing new and exciting to report from our end! I hope everyone is doing well and enjoying this awesome taste of spring we have right now!

Much better

Bryson's chest x-ray was good. No pneumonia! Yeah. He has had a great weekend, no temps. He felt a little warm a few times but nothing to bad. He is doing well this morning so I think we are in the clear. No trips to Glennon for us!

Little better

Bryson had a good night last night. He was up one time with his coughing. His fever was up when he went down (101 with Tylenol in him) but it didn't seem to bother him to much last night. I think he just hit the point of exhaustion, as did I.

Yesterday our pediatrician said to call the Immunologist down at Glennon. I finally talked to them and I really liked the doctor I spoke with. He went over EVERYTHING with me. He said he was comfortable with Bryson being on a low dose antibiotic for now since his ANC was normal. (Yeah!!) He said if by Monday he is still spiking temps then they need to see him. I am hoping that by then he is better. He is having a pretty good morning so far! No temp. It usually comes on late morning and then comes back in the evening. Its so weird. Our pediatrician also suggested getting a chest x-ray to make sure he doesn't have pneumonia or bronchitis or anything else going on. We are going to do that this morning.

That's it for now. I really can't complain. They had us thinking that this is how he would be all winter long, and if this is the only issue this winter then we are pretty lucky.

One sick baby

Poor Bryson. On Sunday he started running a temp and sounding really gunky in his chest. His temps have gotten as high as 104's. We came pretty close a few times to going into the ER but we made it through without that trip! We went to the doctor on Tuesday and she drew labs on him. I was shocked with how awesome his labs were! His ANC was 3000!! His H/H was 12/36 and his WBC was only 9. His monocytes were elevated which means he defiantly has a viral infection so we are just hanging out and waiting for this to go away.

Yesterday was a good day for him, his fever was gone most of the day and he was eating and playing and almost back to his old self. Then night came. He was up coughing and sneezing and his fever was back (101-102). He woke up this morning doing great and then became really fussy and just wanted me to hold him all morning. He felt warm...I didn't check it to see what it actually is, at this point I can just tell. The pediatrician is supposed to call and check on him today. When we were in on Tuesday she said she would give him until Thursday. I don't know what she meant by that, but its Thursday and he still keeps spiking temps, so now what?

I feel so bad for the little guy. He has stretches where he feels so good and then its like clock work....every night it gets bad again. I know with his immune system function not being the best that he will probably take longer to get rid of this stuff so I guess we will just wait and see! I should be hearing from the doctor soon so we'll see what she says!

Poor little man!! :(