Doc apointment and ID awareness month

Bryson had a check up today. We didn't do any vaccinations. They don't want him to have anything live with his immune system stuff. Otherwise, it went well. Nothing exciting. We are going to keep up with therapy and maybe over the next few months start working with a speech therapist if he doesn't start talking soon. Our ped wasn't to worried about it, but wants to make sure by 16 months he's talking more.

We talked about how pale Mr. Bryson is. She said that whenever we wanted to grab counts on him is fine with her, I think I will wait a bit. Why stick him if he's acting ok? And his cheeks do have some pink color to them so that's good! Bryson has these veins that are really noticeable around his eyes and its pretty dark around his eyes. She said that this is pretty common in these kiddos to have that appearance. It doesn't bother me in the least....he could have purple hair and green skin as long as he is healthy I DON'T CARE. I just worry because when he starts to look pale like this his counts tend to be dropping. I will see how he does over the next week or so. I know if she thought he needed it she would have sent us over to the lab, but she didn't so I'm not to worried about it. I trust her 110%!! Its wonderful to have a doctor that you feel this comfortable around! I am bummed b/c she is going to be out for a few months having a baby ( I am so excited for her, but sad for us!) What I love is that she said if we need anything while she's out to call her. How awesome is that?

We go back to Immunology in June. That's about it for now!

Thanks for all the amazing prayers!

Don't forget that April is PID (Primary Immune Deficiency) awareness month! I will be doing a fund raiser once they send me the packet info. We continue to count our blessings each day. Bryson is doing amazing. They prepared us for the worst during the winter and he did so well!We haven't had to do IVIg since last spring. That's amazing, especially with how low his counts are! There are people out there that have to get it every week. I'll post with more info once I get my packet!

Therapy update

We had an amazing Easter. Bryson and Connor were so much fun this year. I promise to post pics as soon as I get a chance.

Therapy was great last week. Bryson was walking all over for her! I thought Bryson was doing so well, I hadn't noticed the leg being as stiff as it was when he first started walking. I thought for sure she would be finished with us now! Not so much. She actually wants him to be evaluated now by an Occupational Therapist. Bummer. I thought we would be done with therapy, not so much.

I don't see OT being that big of a deal. Its really just to fine to tune his fine motor skills. We have spent so much time working with him on his gross motor, the fine motor kind of fell behind a bit. He may just need a little push to get things going!

Lab wise, we won't be checking counts until June. Is it driving me crazy not knowing? OF COURSE! We have gone from twice a week counts, to once a week counts to once a month and now until June! AHHHH! I am thinking that this is a good sign to have them be spaced out now. I know the Immunologist wants to get his immune system closer to being mature so we can get a better idea of what's going on in there. Then we will come up with a plan of action, if we need one. Hopefully they just start to all come up on their own! There really is no sense in checking them every week if there is no change and he is doing well.

Thanks for the prayers! We will post some Easter pics later.

One quick question...why the heck is it 40 degrees outside in April? SERIOUSLY.