Autoimmune Neutropenia (???)

Ok, so I know I haven't updated anything. Sorry. Its just not been to exciting around here, which is good for once! We did Bryson's labs today and his hemoglobing went up to 9.4! Yeah!!! Dr. Hanson said we SHOULD be out of the woods as far as needing another transfusion goes. But, his ANC (the white count number) went down. Dr. Hanson called me (at 830 at night, which scared the hell out of Brian and I!) and he told us he is so happy to see his hemoglobin go up. He said that he thinks that what is going on with Bryson's ANC is that he has "autoimmune neutropenia" this is something that is a response to a virus or infection (shocker!) Here is a link that was pretty helpful...http://autoimmunedisease.suite101.com/article.cfm/autoimmune_neutropenia

For now we aren't going to do any of the threapies, we hope that he can come up on his own, plus we are waiting for the chromosone part of the biopsy still. The key with him is keep him from getting sick. Since its starting to get nicer out we can probably take him out when we need to, but its just not really worth the risk right now of him getting sick. Since he is so little a simple cold could put him back in the hospital!

So the next question is how long is this going to go on for? We got kind of a vague answer, I think no one really knows, which is very frustrating for us! Dr. Hanson said a few months to a few years! We can stop sticking Bryson as much now too, he said we just need to grab a count about once a month. However, knowing Brian and myself, we will be doing it more frequently. Our pediatrician is all about putting our mind to ease, and we will rest better knowing we are ok! I think that is something we are going to have to get used to, not know what his counts are every week...so we probably need to be eased into that once-a-month thing! God love our pediatricin, she has been awesome to us!

So that's the latest here, check out the link...it was very helpful and makes a lot of sense for our little man! At least we are out of the woods with the really scary stuff! No one likes to see their baby sick, but we can get through this! All our prayers have worked, and I KNOW that my Poppy was with this little baby the whole time making sure he was being taken care of! For now we are going to enjoy our family life and I am going to try not to waste my worries on things that can't be fixed and enjoy the moments we have right now! Love you all!