Therapy Time

We had Bryson's counts done yesterday. They were the best ever! We were so excited, but nervous still. They type of neutropenia that Bryson has can make his ANC go up and then down. So who knows. It can be up one week and totally down the next. At least for now its up, way up and hopefully stays there for a while so we can get out more! The other part that we aren't to sure about, since this is all autoimmune is what happens if he gets sick, will he have to go through this all again. We aren't sure, but we are sure that its only a matter of time before he gets his first sickness so I guess we will wait and see. For now he's happy and healthy, so that's great news. His hemoglobin was 11! That was amazing for him! YEAHHH!

So, we went to the pediatrican's office, a place where we have been avoiding due to germs, and Bryson got his vaccinations. Poor baby. After the doctor evaluated him she said she thinks he needs some therapy, PT/OT to help him out. He is pretty delayed with his motor skills. I am getting that set up to come to our home and do it, which will be nice. Hopefully that helps him out. He also has a pretty flat head, we do lots of tummy time, but with his reflux the only really comfortable positons for him are upright, plus he can't lift his head off the ground yet so tummy time only lasts a short time. If it conitues to get worse by the next time we see her, then we will go see a cranio/facial surgeon and see what he has to say. We may be looking at a helmet or something, who knows. That is just cosmetic, so I don't really care, as long as physically he is doing well. We also get to start our fatty out on some baby foods, veggies first. So we will give that a try tonight. Bryson weighed 15 lbs and 5 oz! 60 percentile! Not to shabby for a 32 weeker! His head was in the 90 percentile! What a bruiser! I love it!

That's the latest. We are pretty blessed that things are going so well for now. We are also so fortunate that its finally nice outside so he can get out to enjoy the nice weather! I think if it was winter time we would definatley be staying in our home! We are off to enjoy this great day!

Thanks again for the continued prayers and support!

Vaccinations

Things are still pretty nice around our house! Bryson is doing so good. We see his pediatrician this week and they are actually talking about doing his vaccinations! We are going to do counts on him on Wednesday morning so that we can see if doing his vaccinations will be ok. As long as his ANC is above 500 they will do it. Brian and I are kind of on the fence about doing these right now, but we trust our doctors. Other than that there really is nothing to report from Mr. Bryson....

Connor has a kindergarden graduation this week, I can't believe how fast time flies. He is so much fun these days, I love it! I love seeing the two of them together, its so sweet! That's really it until the later part of this week...think high numbers!

Quiet for once!

Sorry I haven't posted in a while. Things have been really great around here. Bryson is doing so well and we are just starting to feel like we can relax and enjoy him! Its so great. We don't have to do labs again for a while and we don't see another doctor until next week sometime, crazy! I almost don't know what to do with myself! We are still following Neurology and Hematology and have an apointment with cardiology in a few months. Bryson has a ASD in his heart, usually they close up on their own and so they want to see him back in a few months. This was one of the things that got put on the bottom of our list due to all the other stuff going on with our little man, especially since there is nothing we can do about it right now and it doesn't cause him any distress.

This Mother's Day was probably the best that I could have ever asked for. I had my two sons to spend the day with, at home. (Until I had to go to work). We did go over to Brian's mom's for a while before I went to work, but I am just so greatful that we were all together. I just have so much to be thankful for this Mother's Day! We had our first family picture with all four of us in it! That is all I wanted for Mother's Day and I got it. I hope all the mom's out there had a great day, we deserve it!

More labs...

We did labs again on Saturday and they were the best that Bryson has had! Things were still low, but they were good for him. We are hopeful that they will continue to go up. The hematologist did tell us that this type of neutropenia does tend to go up and down, but we are hoping that it will stay up. Another thing that's great is our little man doesn't have to be stuck again for a month! Yeah!! Things should finally be kind of quiet around here with doctors for a while. We should only have to see his pediatrician in a few weeks and all the specialists are for about a month again.

Thanks again to everyone for your thoughts and prayers, they mean the world to us!

Preemie Moms

Someone sent this to me and I really like it....

How Preemie Moms Are Chosen(Adapted from Erma Bombeck)

Did you ever wonder how the mothers of premature babies are chosen?
Somehow, I visualize God hovering over Earth, selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
"Beth Armstrong, son. Patron Saint, Matthew.
Marjorie Forrest, daughter.Patron Saint, Celia.
Carrie Rutledge, twins. Patron Saint ... give her Gerard. He's used to profanity."

Finally, he passes a name to an angel and smiles. "Give her a preemie."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a premature baby a mother who knows no laughter? That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it.I watched her today.She has that sense of self and independence so rare and so necessary in a mother. You see, the child I'm going to give her has a world of its own.She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect.She has just the right amount of selfishness."
The angel gasps, "Selfishness?! Is that a virtue?"
God nods.
"If she can't separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't know it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says 'mama' for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see – ignorance, cruelty, prejudice – and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air.
God smiles. "A mirror will suffice."