We had Bryson's counts done yesterday. They were the best ever! We were so excited, but nervous still. They type of neutropenia that Bryson has can make his ANC go up and then down. So who knows. It can be up one week and totally down the next. At least for now its up, way up and hopefully stays there for a while so we can get out more! The other part that we aren't to sure about, since this is all autoimmune is what happens if he gets sick, will he have to go through this all again. We aren't sure, but we are sure that its only a matter of time before he gets his first sickness so I guess we will wait and see. For now he's happy and healthy, so that's great news. His hemoglobin was 11! That was amazing for him! YEAHHH!
So, we went to the pediatrican's office, a place where we have been avoiding due to germs, and Bryson got his vaccinations. Poor baby. After the doctor evaluated him she said she thinks he needs some therapy, PT/OT to help him out. He is pretty delayed with his motor skills. I am getting that set up to come to our home and do it, which will be nice. Hopefully that helps him out. He also has a pretty flat head, we do lots of tummy time, but with his reflux the only really comfortable positons for him are upright, plus he can't lift his head off the ground yet so tummy time only lasts a short time. If it conitues to get worse by the next time we see her, then we will go see a cranio/facial surgeon and see what he has to say. We may be looking at a helmet or something, who knows. That is just cosmetic, so I don't really care, as long as physically he is doing well. We also get to start our fatty out on some baby foods, veggies first. So we will give that a try tonight. Bryson weighed 15 lbs and 5 oz! 60 percentile! Not to shabby for a 32 weeker! His head was in the 90 percentile! What a bruiser! I love it!
That's the latest. We are pretty blessed that things are going so well for now. We are also so fortunate that its finally nice outside so he can get out to enjoy the nice weather! I think if it was winter time we would definatley be staying in our home! We are off to enjoy this great day!
Thanks again for the continued prayers and support!
Thursday, May 29, 2008
Therapy Time
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