Cardiology

We went for Bryson's cardiology appointment yesterday. His echo was totally normal! Dr. Bruns said that the hole he had before was totally closed up, which is a really good thing because if it hadn't they would have to start thinking about repairing it. He said that Bryson's legs and arms turning purple is ok. He went into a long explanation about why it happens, and to be honest all I really heard was that it was "ok". He doesn't ever need to see Bryson back again! Yeahhhh! Finally a doctor that is totally finished with us! I was so happy I almost cried. I know that sounds silly, but I finally feel like we are headed in the right direction and we have our baby to enjoy now! Its a blessing. We are so lucky, yes we have been through a lot, but all the bad that could have been isn't. It really could be much worse! We are still watching his blood counts every few weeks and so far so good with that as well! We hope they continue to stay way up like they should be.

Its getting harder to watch him have labs drawn, they used to just stick his little foot and now he has to have it drawn like an adult, venous. He puts up a really good fight now! I don't blame him one bit. As hard as it is to watch I have to remember how lucky we are. We are so lucky to have our baby at home with us. We can tuck him into bed every night and kiss him and hug him all we want. I can hear him over his monitor blowing raspberries and laughing at his brother. There are many parents who can't do that. I am reminded everyday of how amazing he is and what a miracle he really is to our family.

Busy, Busy, Busy!

I hope everyone had a fun and safe Fourth, I know we had a blast this year with the boys.

Bryson has had a pretty interesting week. He had labs drawn on Monday, which were great. I was so excited to hear how great they were! But that night he started running a temp and I remembered what the hematologist said, he told us that what will happen when he gets sick is usually the counts jump way up and then can go back down....in most cases. Hopefully not ours! But we just aren't sure how low being sick can make his counts. I guess we will find out!

We did get approved for the PT services through First Steps, which is great but also bittersweet. This means they saw enough wrong in him that he needs the services. Oh well, we will work on it! Our physical therapist wants an occupational therapist to get involved with him as well to help him with his feedings, he does get a little gaggy with them.

We saw our general ped today, she said Bryson looks great. He is in the 75 %ile for weight and his head is >100%ile! Not to shabby for a premiee! She is a little concerened about his legs and arms turning blue, so we will be doing another cardiac echo. She said she really thinks that it might just be how his circulation is. We hope that's all it is! I am sure it will all be fine, its just kind of freaky. Better safe than sorry!

I think that's it for now. This week has been nuts! Connor is off school and summer school is finished so he is home with me for the next week and a half, which is so nice having him here but it sure keeps me busy! I am ready for school to start back up.

Thanks again for all the continued prayers and support!

PICS!

I realize that I haven't posted any pics in a while...here you go!



Brian and Connor at the Zoo, someone is getting sleepy!!!

Bryson five months...wait, who's the Boss? With those dimples, you can bet he's the boss!

Daddy and Bryson at the Lake

Brian and Connor swimming at the Lake

Bryson at the lake, he loves being outside and had a blast watching Connor and Daddy swim!