Cardiology

We went for Bryson's cardiology appointment yesterday. His echo was totally normal! Dr. Bruns said that the hole he had before was totally closed up, which is a really good thing because if it hadn't they would have to start thinking about repairing it. He said that Bryson's legs and arms turning purple is ok. He went into a long explanation about why it happens, and to be honest all I really heard was that it was "ok". He doesn't ever need to see Bryson back again! Yeahhhh! Finally a doctor that is totally finished with us! I was so happy I almost cried. I know that sounds silly, but I finally feel like we are headed in the right direction and we have our baby to enjoy now! Its a blessing. We are so lucky, yes we have been through a lot, but all the bad that could have been isn't. It really could be much worse! We are still watching his blood counts every few weeks and so far so good with that as well! We hope they continue to stay way up like they should be.

Its getting harder to watch him have labs drawn, they used to just stick his little foot and now he has to have it drawn like an adult, venous. He puts up a really good fight now! I don't blame him one bit. As hard as it is to watch I have to remember how lucky we are. We are so lucky to have our baby at home with us. We can tuck him into bed every night and kiss him and hug him all we want. I can hear him over his monitor blowing raspberries and laughing at his brother. There are many parents who can't do that. I am reminded everyday of how amazing he is and what a miracle he really is to our family.