I have to say, I am a much happier person then I was with my last post. Sorry about that, I think I just really needed to vent.
I don't think I have mentioned her before, but there is a mom that I have become pretty close to who has a son who has the same type of neutropenia Bryson has. She contacted me through my blog and we have become pretty close. She did a little research after I vented to her one day and she found a group online that is people who are affected by parvovirus. I just desperately wanted to talk to someone who had been where we have and who could give us an idea of what to expect. If we were done worrying, that type of thing. I ended up contacting this one mother who is infected with chronic parvo. She informed me that there is a doctor in Denver who has done a lot of research on parvo and he is a pediatrician. I called their office and spoke to his assistant for a while. She was so nice. I told her Bryson's history with parvo. I told her how well he is doing now, and how great his counts have been. She brought a new insight to the table that none of us had really thought of. Their thinking in Denver is this...Bryson may be doing amazing right now, but what happens this winter (which has been my concern) when all the funky virus' start popping up. How will his body react when exposed? They have found that most kids/adults affected by this virus so badly have some sort of underlying immune system issue. Why did Bryson's body react the way it did in the first place? Why are other babies who are exposed to this virus in utero able to fight off the virus and Bryson wasn't able to? She suggested doing a immune system work up. We could travel out there (ironically, I have family out there) but we decided to do what we can from here and obviously, if needed, we would travel if they felt that was necessary. I spoke with our ped on Friday about all of this to see what she thought. She was impressed and excited about the doctor. She said we should do it and definitely do it before winter time so we can be more prepared. She said that hopefully we find nothing, but its worth it for all of our piece of mind instead of worrying all winter long! The office in Denver called our ped and left a bunch of labs that they suggested doing and they said they would be more than happy to interpret them if needed. I am just anxious to get to the bottom. Hopefully we find nothing and it was just a fluke thing that happened in utero. That would be great! I am just excited that this doctor actually exists!
Bryson had a very busy week...he rolled over!!! YEAH! He is also starting to sit up on his own! I think he's doing awesome. Our pediatrician really wants us to try to get approved for First Steps again, so we will see what happens there. I am thrilled with how well Bryson is doing, especially since we started PT. Good job buddy!
That is all for now. Connor started soccer again and is doing great in school!
Monday, August 25, 2008
New Doctor
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1 comment:
I'm so happy that you have some good news! How great is it that you've found someone with some indepth knowledge about all of this! AND rolling over? That is just awesome! Give the little man a big hug for me!
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