We FINALLY got the genetics labs drawn today. We also had a meeting with Dr. Knutsen because Bryson broke out in this nasty rash all over. We think its from the Omnicef so we are going to try him on some Augmenten instead. We'll see. Dr. Knutsen spent time with me going over his labs. He explained to me what we were looking for and its pretty scary. X-linked Hyper IgM is the name of the disorder.
http://www.immunedisease.com/US/patients/IDF/hyper_igm.html
Its kind of scary, the doctor said that if he does have this he will need a bone marrow transplant. Hopefully its not what it is. He said the other possibility would that it would be some sort of transient agammaglobulinemia and he will outgrow it. That would be nice.
We should have some sort of idea in the next week or two. I'll post when I know. Until then, prayers are appreciated!
FYI:Bryson is crawling! It is so cute! Good job buddy! I will try to post video later on.
On a Connor note, today we met with a psychologist about him. He was diagnosed with ADHD (no surprise to us) we aren't sure which direction we are going to go with this news. I don't know how comfortable we are with starting him on meds. He is such a fun kid and we really don't want to change that about him. We have some thinking to do on this. I guess, when it rains it pours.
Thursday, November 6, 2008
labs drawn, back to waiting!
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