My favorite (sarcasm) nurse called me yesterday. She simply left me a message telling me that it may be 10-12 weeks to get back the other test. Are you kidding me right now!!! That has NEVER been mentioned by anyone. Everyone always said 3-4 weeks. Even the doctor! I just take everything that she says with a grain of salt, but it is starting to get soooo frustrating because she is who I have to go through to talk to the doctor. I called and left her a message asking if that is true then why have we not started him on some sort of IVIg for now. That makes no sense to me why they would let an immunocompromised child go over the winter without a diagnosis without treatment. I don't get it. I really don't get her. She acted like it was no big deal...just 10-12 more weeks!
The important thing right now is that we have a happy and healthy little boy at home. He is doing amazing. I am not. I just want the answers and feel like we have been so patient for so long and now I am starting to loose it!
I guess that is it for now! I will let you know if she calls me back, I am sure she loved the message I left for her, but come on. A nurse doesn't treat her patients family like this.
Thursday, December 4, 2008
OH MY!
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