Friday, January 23, 2009

Quick Update

I am doing this from our temporary source of Internet. So I need to make this quick. So sorry for not updating sooner, our computer isn't working very well.

We redrew Bryson's labs last week. His immunoglobulins were all still pretty low. The silly nurse told me that his IgM was normal and when I got my copy of the labs I called her out on it and she apologized (again). We have decided to not do the IVIg, Bryson had such a rough time with it last time he got it and he is doing so well right now I hate to mess that up. Yes, his labs are still low but the did go up a little bit on their own, which is promising. The doctor still doesn't know what to make of the test with his protein being off which bothers me to no end. So basically all the testing we just did we still don't have a real answer. We know his immunoglobulins are low, we know his T-cell and B-cell function are decreased and we know his CD-40 gene is normal. So confusing. This doctor wants to redo labs in June so I guess we will wait until then unless we have issues! We saw our pediatrician yesterday and she said she thinks that he has two different issues. 1-parvo 2-an immune deficiency issue. She said that if we don't get answers with these next tests we may need to look to someone out of state that could give us answers. I guess time will tell with him. Our ped said to remember that kids with immune system issues don't generally become symptomatic until they are at around two years old. GREAT. Hopefully the rest of this year is one we can enjoy and get out and start doing more as a family. Bryson's ANC count was pretty good, it was 1,000. They just want that one up above 500 so that was good news! His anemia seems to have been resolved as well! YEAH! Baby steps!

Bryson turned one yesterday. I can't believe the year that we have had as a family. Its been pretty trying and rough. But we made it! I know I have said this before, but you really do find out who you can count on when going through stuff like this. Its pretty amazing. Thanks so much for all the prayers and support! Please continue to keep our little man in your prayers, they really seem to be working!

I promise to update with pics later and I know I still have Christmas theme on my page, I will get that changed as soon as I get a chance!

1 comment:

Anonymous said...

I can't believe that he is ONE already!! My, how time flies! I'm glad to hear that he gets to wait until June for more labs, poor little body needs a break and so do his parents! You are always in my prayers!!