Back to Reality

Sooooo we went back to OT today. I walked in there thinking we would be DONE with all of this. It seems that the therapist has a different agenda. She asked me how he's been doing, I told her I thought he was doing great he really seems to be improving to me. As of today we were going just once a month. After this session she upped us to twice a month....grrrr. She noticed a lot of right sided dominance, I guess I have been choosing to not see it but as he was doing things and she was pointing them out I guess that is how he's been . Its just the norm for him so I don't look at it as different. Oh well, I guess we will just keep going with it :)

She asked when we were seeing the neurologist again, and I said he left it up to us. If we felt like he needed to see him again at 18 months then he would probably order scans again. She said that he comes in and has meetings with the therapists about his patients and Bryson is up for a meeting in a month or two. She said let's see how he's doing next time, but right now I would suggest he continues to follow him. GREAT.

Maybe in a month it will all be gone. Maybe in a month he will be talking. Maybe in a month he will be up to par with other kids. Maybe in a month we will have his labs back and all this will be over. Its been a loooong year, and its starting to wear on me again. I think we have been living a relatively "normal" life with him the last few months. He hasn't been sick, he hasn't had blood work and we have stayed out of doctor's offices. I guess going without all of that pushed the reality of what's really been going on with his little body to the back of my mind. Its time to face it all again next week. He will have his labs drawn next week and hopefully we have the results back by the end of the week. I really think they will be good because he's done so well since I've taken him off the antibiotics. I guess I'm just in a funk right now. I know we are lucky...I've said it over and over again how lucky we are. We get to tuck our little man in his bed every night and there are parents out there who aren't able to do that, but I am really hoping that we can finally be done with everything. I am dreading his lab work. I know he's going to scream and throw a fit and to be honest, I don't blame him. I didn't have a hard time with it all when he was little, maybe its because of my job and its what I'm used to. But the older he gets the worse it is. He understands more now and it just sucks. Let's hope this is it for a loooonnnggggg time for him!!!

Thanks for letting me vent. I don't even know if people still read this thing. I really do it to keep up with his history and its an outlet for me to vent to. Sorry to be such a downer!!

Here's to good labs next week!!!! Fingers and toes crossed please!!!