Long time No post! Immunology take 2

Wow...its been a loooong time since I have posted! Sorry to any faithful readers out there!

We had our appointment at Cardinal Glennon with Immunology last week. It went ok. I kind of felt down after the meeting though because its just not what I was expecting to hear. I thought that we would be wrapping all this stuff up and that's just not the case. Basically what he said was that he wanted to repeat all his labs from last fall again (which is sooooo much lab work!) He wants to check his T-Cell function and B-Cell function again. I was under the impression that if we started to see the immunoglobulins (From here out I will call them Ig's) coming up that the rest would follow, apparently that's not the case. He said that he is not as thrilled as I was with his Ig increase. That they are still all low. He is happy to see them coming up on their own, but he is concerned about the T-cell function too. So basically we just hurry up, get the labs drawn, and wait which we have become professionals at by this point!

We talked about how Bryson gets when he does get sick. He gets crazy high fevers (above 104) and always always breaks out in a rash the last few days of fevers. When telling him this he said "kind of like Parvo?" I was like, "well, I guess its like parvo, but the rash doesn't look like a parvo rash." He then went on to inform me that there is a form of chronic parvo. This I could have gone the REST of my life without knowing. I hate that stupid stupid virus. He said he doesn't think this is what he has, but we will have to watch him. It sounds like Bryson has more susceptibility to getting sick with virus' instead of bacterial infections. This makes sense because if his T-Cell function is off that is what mediates a viral response. If that makes sense to you!

So from here we just wait and hope that we continue to see his numbers increase and that everything is falling into place. He reminded me that last year he told me that usually kids with Immune Deficiencies don't usually become symptomatic until they are closer to two, so if Bryson's numbers aren't up then this could be a ugly winter at the Eisel house :(

"What do we call him?" I asked, wondering what his diagnosis is.

"Combined Immune Deficiency" is the answer I got. Because apparently he has two separate issues going on with his immune system. His Ig's are low and his T-Cell function is decreased. How do we take care of this all? Hopefully he outgrows it, these labs should be pretty determinate if we are going to outgrow it all or not. If stuff is still low, we have a few options, but not many and none of them sound good to me.

Keep those prayers coming! We have been so blessed in the past and hope that they keep coming our way.

Sorry so long! I will post when we have labs next week sometime! Thanks!