Cardinal Glennon

Today was our big appointment. Poor Brian was to sick to go with us, so he stayed home in bed. I really liked the doctor and his staff. Basically, he thinks that Bryson has some sort of B-Cell issue. He gave me the name but I can't remember for the life of me. I know it had something to do with lymphocytes. He didn't give me much information after that, he said he wanted to wait until after he did some more labs to see for sure. He said he doesn't like giving out to much information about a disorder unless he has the definitive diagnosis. Which just drives me insane. He did talk about his neutropenia, and said that this diagnosis would fit right in and would be the main reason for his neutropenia issues. Not Autoimmune Neutropenia as we thought it was in the past. He said even though his numbers have been fine lately, he said they can really fluctuate still so he wants to continue to do frequent CBC's. He wants to do genetic testing on him as well, which we weren't able to do today because we have to wait until insurance approves it. They took so much blood, again from Bryson. However, it was like night and day compared to St. John's lab. The first thing they asked me was how much he weighed and determined that they couldn't take all the blood that the doctor had ordered, but we should be able to get the info that we need from what they did take. Plus, he will probably be going back next week for the genetic testing and we can get the rest then if we need to. At St. John's they took way more than they did at Cardinal Glennon as far as blood goes. I knew it was to much. Also, they totally numb the area with numbing spray before they stick, so nice. He still was pretty pissed off, I think it was us holding him down that made him so angry. Anyway, he did great. I am just frustrated, because its more waiting since this stuff will take about two weeks to get back. ARRGGHHHH. I just want the answers. I want to know what it is, and I want to know what to expect for him. I guess its in God's hands now! Lots of prayers would be appreciated!

We have been so lucky. Bryson has been so healthy and hasn't had any issues yet. Let's hope its a good winter...no RSV please!!!