Ok. So here is the news...
#1 They want us to repeat his prevnar vac. That is the one to protect against pneumococcus and meningitis and blood stream infections. His titers were low for that (Which we already knew). So he will get the vax next week and then redraw the titers in four weeks to make sure they went up.
#2 They want us to start him on Omnicef (antibiotic) once a day as a prophylactic treatment. We don't really like this idea. We have an appointment with our ped next week so I will talk to her about this one. His immunoglobulins were still all really low. So still, no daycare or crowded indoor public places.
#3 The B-Cell labs came back ok, but they still want to do the genetic testing...this I don't understand. I have a lot of questions for them. I don't get why we need to still do this. Unless there is something that I am not aware of, if his B-Cell tests came back good then why do we need to do this? I don't get it. I talked to the nurse yesterday, and I would really like to talk to the doctor. Those of you out there who have been through a lot of doctors like we have, know its not so easy to get an actual doctor on the phone!
#4 I guess that's it for now. We are still waiting on the approval to get the genetic stuff drawn. We have an appointment with our pediatrician next week. Those two things are what we are waiting on.
Really, I don't feel like we really got ANYWHERE with all this stuff. I guess that's good, but its just so frustrating. Not that I wanted to hear that there is something really wrong with my baby, but I just feel like we keep putting him through all this testing and don't really get any answers except it all turns out to be related to our good ole' friend PARVO.
I'll update you all as we get more info. I think that's it for now! Thanks for all the prayers!
Friday, October 24, 2008
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