Wrong answers, back to square one!

GRRRRRRRRR. That says it all.

Dr. Knutsen (the immunologist at Cardinal Glennon) called me today. I am so glad he did. I had a ton of questions for him. I told him I didn't understand why we were still doing this Genetic Testing if everything else came back ok. He said "because everything didn't come back ok." He told me that Bryson's T-Cell's had a significant decrease in function and his Memory/Helper B-Cell function was low. He said he has a total absent response to the prevnar vaccine (pneumococal) which is rare to see a complete absent response. I was so frustrated. I told him that his nurse told me everything was ok except his immunoglobulin function was low and that was probably from parvo. He said no, that everything else was off as well. I told him I was still waiting to hear if we got the approval to do the genetic tests and he said he had a note from the nurse saying that she got the approval at the beginning of this week. Why the hell didn't she call and tell me this? I would of had him up there that day to get it all drawn! GRRRRRR.

I asked a ton of questions and didn't seem to get to many answers from him. He said that he would love to give me answers but just can't until he has all the other stuff in front of him. I asked him if this would be a chronic problem or if we would have to do more IVIG, and he said we would probably be looking at doing IVIG down the road, but can't answer anything else until he has the pieces to put together. GRRRRR. I understand this and what he is saying but I feel like this all totally came out of left field and I was just feeling so good about him with everything and now we are back to the damn waiting game. GRRRRRRRRRRR!!!!

That's all I know for now. Bryson got his Prevnar booster yesterday so we will redraw his titers in 3-4 weeks to see what his response is. (I saw it leaking out of the hub of the needle and his leg after the nurse at the office gave it to him, so my guess is that it will still be low because it all leaked out of him!) Anyway, we started him on the Omnicef like he wanted so hopefully that will keep us well!